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Patient resources

More information on ACC

The ACCRF supports research into ACC that will accelerate the development of improved therapies and a cure for the disease. ACCRF provides information about living with ACC and treatment options.

The purpose of ACCOI is to create a worldwide community of ACC patients and supporters who share information, support, and hope while working together to develop a cure for ACC.

Cancer.Net’s guide to Adenoid Cystic Carcinoma, providing information about symptoms and signs, treatment options, statistics, information on latest research, and more.


More information on Desmoid Tumors

A nonprofit organization with the mission of facilitating and funding research toward a cure and supporting patients with information.

Cancer.Net’s guide to Desmoid Tumors, providing information about symptoms and signs, treatment options, statistics, information on latest research, and more.

A nonprofit organization with the mission of being a resource for patients and relatives to facilitate the contact between affected persons and the interaction and cooperation with medical experts (website in German).

The international Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups aims to extend information services, patient support and advocacy to patient organizations for the benefit of sarcoma patients across the whole of Europe and internationally.


General information for cancer patients

Provides up-to-date, comprehensive cancer information from the U.S. government’s principal agency for cancer research.

Community-based voluntary health organization dedicated to eliminating cancer as a major health problem. ACS provides information about diagnoses, payment and other support for people affected by cancer.

A non-profit cancer research organization, with a mission to coordinate and conduct international translational and clinical research to improve the standard of cancer treatment for patients.

National organization from the U.S. providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer. CancerCare offers counseling, education workshops, community programs and more.

As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Help for Cancer Caregivers is a unique collaboration of organizations with a shared goal of improving the health and well-being of the people who care for people with cancer.